The Aicardi Goutieres Syndrome Advocacy Association is collecting testimonials, interviews, and data to capture and present our community’s difficulty accessing our only treatment. We want to share your story properly with the people in the best position to improve the situation. Our previous campaign was a success, and on November 17th we’ll be meeting with representatives from Eli Lilly, the manufacturer of the JAK inhibitor baricitinib. We’ve provided a number of easy ways for you to exercise your voice. We’ll make sure you get heard. Click the button below to learn more about how you can join the effort.