This is what success looks like!

From our perspective, our 2022 AGS Family Symposium was a wild success. We shared updates, stories, and research with over one hundred people. We’ve received such supportive feedback that it truly motivates us to keep up the advocacy and underscores the value of bringing our humanity to this work.

Feedback

We would like your feedback about the conference so that we can do better next time and ensure that we’re meeting the needs of all AGS families across the globe. It should only take a moment.

Video ShowCase

We’ve shared a playlist of conference recordings, in order, as a Vimeo Showcase. Although we’re unable to share our breakout rooms, you’ll find a wealth of information and insight in our many conversations and presentations.

Translated Subtitles

Some of the conferences recordings have been transcribed and translated with subtitles. You can watch many of them in your language by enabling Vimeo’s Closed Captioning “CC”.

We have prioritized the translation of videos and presentations that we felt were the most clinically relevant. We will include additional languages and videos by request.

Polling Results

During the conference, we asked AGS families a number of questions to illustrate and validate what we all know, that AGS presents significant challenges to families.

AgS Patient Registry

The most important thing we can all do for each other this year is enroll and participate in the AGS Patient Registry. We’ve seen many of you register, and we’re hoping to follow up with surveys to inform each other about COVID-19 vaccination safety shortly.

Congratulations to our Raffle Winners

We’ve contacted everyone that won a t-shirt during our wheel of names giveaways. If, for some reason, you haven’t heard from us, contact info@agsaa.org and we’ll get it straightened out. We hope you wear your AGS t-shirt with pride.