We are looking for a Rare Kind of Scientist…

On this Rare Disease Day we will be fundraising to establish a young researcher grant. By funding a scientist and/or clinician early in their careers, we hope to spark a life-long passion for Aicardi-Goutieres Syndrome.

It is our goal for Rare Disease Awareness Day to raise $28,000 to fund a research project from a medical student or doctoral candidate that will enhance our knowledge of AGS and can inspire young professionals in the medical field to pursue a career in Leukodystrophy research–specifically with the goal of eradicating AGS.