Edit:

Between our Facebook Fundraiser and direct donations we raised over $11k for this grant from more than 150 donors! We’re excited to get started organizing the details of this grant. We want to make sure we carefully align the RFA with semester boundaries for what we expect will be a student project. And, we’ll make sure we provide guidance and suggestions for research that can provide the most immediate impact and leverage our new tools and collaboration. From everyone at the AGSAA, Thank You for your support!

Today is Rare Disease Day! Share the news! This Rare disease community is looking for that rare, young researcher to spark a life-long passion for Aicardi-Goutieres Syndrome (AGS). Every dollar we raise on this #RareDiseaseDay will fund a grant to help us capture the heart of the next AGS expert.