Big Announcement - We’re officially going global!

AGS Americas Association 🔜 AGS Advocacy Association

But to most people, we’ll still be AGSAA 🌱💪💙. We plan to slowly roll out changes as we await the finalized paperwork.

Our organization, diagnosed community, and profile has grown significantly since AGSAA’s inception. We are already providing support to AGS families around world but keeping the “Americas” designation in our name still makes it really confusing for families, collaboration partners, institutions, and industry.

The more work we do, the clearer it is that as an organized global community we will have a far greater impact and footprint than if we are solely advocating individually on different continents. Especially when it comes to accelerating research and science in a proactive, collaborative, impactful way. We’ll make reasonable attempts to translate and communicate all information and activities in multiple languages, which includes translated subtitles on our videos!

We are working on the US government paperwork to switch out “Americas” for “Advocacy” in our name. Our goal is to have AGSAA help to represent the global advocacy entity and create an international scientific advisory panel and collaborate deeply with all other country and regional groups so that we all work together to create the future we need. It doesn’t mean that we want to replace or oversee any local organizations or overstep, just give everyone a home to formally join forces for partnership and evolution so we do not all keep re-inventing the same wheel. And of course each country will continue to have their own very specific support needs and projects in development, which are so vital.

Stay tuned for forthcoming website changes, more info about our expansion plans, as well as AGSAA Ambassador program in development and other opportunities to help the cause.

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