The Rare Advocates Podcast
Welcome to a patient worthy, rare disease podcast for all. We are the rare disease advocates, part of the Aicardi Goutieres Syndrome Advocacy Association (AGSAA). This non-profit works to improve the lives of individuals and families living with Aicardi-Goutieres Syndrome (AGS). We'll regularly invite families, scientists, therapists, experts, clinicians, etc. for short conversations about topics relevant to the AGS community.
