Family Planning FAQ

Frequently Asked Questions Regarding Family Planning for Families Affected by Aicardi-Goutières Syndrome

We are excited to share knowledge and expertise from our part time Patient Advocate contractor and licensed Genetic Counselor, Shannon Wieloch, MS, CGC.

This FAQ aims to address family planning, prenatal genetic testing, and pregnancy and neonatal evaluations for families affected by AGS. Our goal is to address diverse topics and scenarios from our global community. This living document will be adapted to your feedback and new information as it becomes available.

This guide is written in three sections: information for use before pregnancy, during pregnancy, and after pregnancy. If you have a question or concern not discussed in this FAQ, please send it to support@agsaa.org.

If you would like to book a private reproductive genetic counseling session with Shannon, please check out her scheduling and cost info at www.storkgenetics.com. Shannon is licensed to see patients in multiple states, and you can also find additional GCs at https://findageneticcounselor.nsgc.org/

We are working on some translated versions using Google Translate and will upload when they become available.