AGSAA Programs
AGSAA funded programs to support families and achieve our mission.
Meal cards for families and individuals experiencing AGS related hospitalizations or hardships.
The AGSAA will provide meal delivery gift cards if you or a family member are experiencing hospitalization or similar hardship. We understand the burden these circumstances place on families and we hope to ease some of it with an easy meal. Send us an e-mail at support @ agsamericas.org or find us through any of our social media channels.
Incentivizing and Encouraging the Busy AGS Community to Participate and Engage in Important AGSAA Surveys with Gift Card Raffles.
The AGSAA relies on feedback from and communication with the AGS affected community to better focus its efforts. We recognize that AGS affected individuals and families have busy schedules and extra responsibilities that make survey completion difficult. We intend to raffle an Amazon gift card (or similar) with each survey for those that have reasonably completed the survey and qualify for this program.
Our Favorites
A collection of our favorite products and resources
The Mighty
Created by a group of mothers with medically challenged children, the Mighty shares real stories by real people facing real challenges. A safe platform for our community to tell their stories, connect with others and raise support for the causes they believe in.
Kates Farms
Plant-based meal replacement shakes made from the goodness nature provides. Free of the top 8 allergens and certified organic. Simply, all things good!
feeding tube awareness foundation
Run 100% by exceptional parent volunteers who combine their personal experience and professional knowledge. This website is dedicated to providing pragmatic information for parents and caregivers on handling every aspect of tube feeding and navigating day-to-day life with a child who is tube-fed.
LEUKODYSTROPHY FAMILY FORUM
Online community for families to receive leukodystrophy-specific support and guidance to get the best care for their loved one.
Global Leukodystrophy Initiative
A global consortium of scientists, patient advocates, physicians, and families committed to improving the lives of individuals affected by white matter disorders.
COurageous parents network
A destination created by families, for families, to support and strengthen them as they care for very sick children. Here you will find wisdom from fellow parents who understand, as well as resources developed by experts to help you cope and get through each moment.