Meet Bo

Hello my name is Bo, I am 13 months old. I have a rare genetic disorder called Aicardi- Goutieres Synrdome or AGS1. I was diagnosed when I was seven months old. I am currently in a clinical trial to help me and others suffering with AGS. I have two sisters who love to play with me. I love to snuggle and get kisses from my family. My family and I thank you for your prayers and support.