Here’s What Every AGS Ally Should Know
Living with an AGS diagnosis is really hard. Knowing that exposure to common viruses can trigger or flare disease activity and often lead to temporary or longterm developmental regressions is a major, constant source of added stress for our families around the world. We’ve also been living with the added pressure of trying to stay extra safe in the shadow of a global pandemic. It’s quite a lot to worry about 🚫🦠😵💫😷🥴
You know what makes us feel better about this? Having family, friends, and community members who also get that this is tough and proactively want to try to help keep us safe too.
Some key takeaways:
🏡 Stay home when you are symptomatic, sick, or if you’ve recently been exposed to someone who is
🙅🏽♂️ It's okay to cancel plans if someone is not feeling well! Even if it’s just as a precaution - we will always appreciate your consideration about this!
🤧 Cover your coughs and sneezes with a tissue or your upper shirt sleeve
🙌 Wash your hands often with soap and water for at least 20 seconds
🤢 Think about all the things you touch every day and how many other people touch them!
🗣 Talk to your whole family to help make this a part of your daily routine, even the youngest members. A lot of our AGS affected individuals are school age children so it makes a huge difference when their peers have healthy habits too!
Thanks for being #agsallies💙