AGSAA, Biogen, LunaPBC, and Genetic Alliance Launch Community-Led Discovery Program for Aicardi-Goutières Syndrome

Many of you may already know that we recently launched an AGS patient registry, and we’re actively working with our partners to develop studies and gather insights. This morning we jointly published a press release to let everyone know of our promising collaboration.

 
With committed community engagement and thoughtful stewardship of our data, we will finally have what we need to tell our story and begin to write a different ending.
— Devon Cordova, Vice President, AGSAA