Participants of the AGS Patient Registry contributed directly to this recent publication in Molecular Genetics and Metabolism finding COVID-19 vaccination to be generally safe in the AGS population. Two big 👏 👏 for everyone in the AGS community that contributed their experiences.
"These findings suggest that COVID vaccination using nucleoside-modified forms of mRNA vaccines are unlikely to directly stimulate ISG expression in response to mRNA internalization in AGS tissues. With continued community spread, we recommend vaccination using nucleoside-modified mRNA vaccines in this rare disease group in individuals for whom vaccines were previously well tolerated." https://doi.org/10.1016/j.ymgme.2022.10.001
