Webinar: Biogen, Clinical Trials, and the AGSAA Patient Registry

The AGS Advocacy Association (AGSAA) has been working with the pharmaceutical company Biogen (biogen.com) to ensure the development an effective clinical trial for Aicardi-Goutieres Syndrome (AGS). We’re excited to share some details about this collaboration in our first webinar, and we have an earnest request for all AGS families. Please watch our webinar in which we explain the state of Biogen’s program for AGS and how a new AGS patient registry study and survey can help Biogen develop a forthcoming clinical trial.

Patrick Winters (Research Director, AGS Advocacy Association), Dr. Jonathan Santoro (Medical Director of the Neuroimmunology and Demyelinating Disorders Program at Children’s Hospital Los Angeles), and Dr. Jessica Shoaff (Associate Director, Epidemiology at Biogen) discuss how patient registries contribute to effective clinical trials and how the Biogen patient registry study fits in the development of a Biogen clinical trial for AGS.

A study managed by the pharmaceutical company Biogen to inform and improve the development of a clinical trial for Aicardi-Goutieres Syndrome. Your survey responses in this study will be anonymized and shared with Biogen.

Presentation Slides